Okay, wow, you guys. Thank you. Seriously, thank you so much for all of your comments and support.
We did get the EEG results back today and they are normal as well. Good news is that...well...the EEG is normal. Bad news is that we don't have enough information for a diagnosis. The thinking is that it's either a seizure disorder or perhaps complex migraines that can set off a seizure. The pediatrician is leaning towards a seizure disorder, though.
The next step is to take her to a neurologist. The pediatrician is expecting the neurologist to want us to wait 1 - 2 months before our appointment so that we can observe her and document any headaches or patterns in her behavior. If she has another seizure, obviously that might speed up the process, though. I was able to meet with the school nurse (love that their school has a full-time RN on staff) and her kindergarten teacher so everyone at school is up to speed. Her teacher will keep a log of any headaches or spaciness or other behavior as well. I will also be hearing from the neurologist's office myself next week and will have a chance to ask more questions and receive any other information I might need.
The good news is that this is probably very easily treatable and might even be something that she will outgrow. The bad news is that this just sucks right now.
I am feeling much better after today, though. After spending most of the morning talking to the doctor and then meeting with the school nurse and then her teacher, I feel better prepared for what's going on. It's not going to be easy to drop her off at school for full-day kindy, but I know I have to. And Wendy told me that I have to be at least two blocks away for it to count as "leaving" her at school. Dang it - you mean sitting outside in the shrubs doesn't count? :p
Oh, and to those of you who might be confused - and believe me, I am, too some days - this is not Emily who is 8 and was diagnosed with diabetes last fall. This is my 5 yo dd, Elizabeth.
Thank you. And thank you again. And again. And again.
The support means so much to me.