We had Elizabeth's neurologist appointment this morning. The neuro seems fairly certain that Libby has a seizure disorder. :( She thinks that, besides the grand mal seizure (I didn't realize that her seizure in August was classified as such, but it was) that she had, that she's also been having partial seizures. Which are different and a bit more serious than the absence seizures that the pediatrician had mentioned. I have a whole lot of research to do because I truly don't understand the implications of partial seizures. Either way, she needs to be medicated. Starting tonight. The neurologist also feels that the migraines are totally unrelated and are not triggering seizures. So, we have two unrelated issues that need to be treated. The good news is that there is one medication that can treat both, so we're going to try that first. The bad news is that Libby is just starting to read and this medication has sometimes interfered (in adult patients) with their ability to read. :( So, I have to meet with her teacher later on today and we have to keep a very close eye on how well she's doing in school and if the medication is affecting her ability to learn. Sigh.
And, Elizabeth has to have another EEG tomorrow afternoon. Which is no big deal. Except that Libby needs to be sleep deprived for it - she can only sleep for 5 hours the night before. Ugh. So, she and I will be sleeping from 10 pm - 3 am tonight and, somehow, I'll have to keep her awake until 2 pm. I think I may keep her home from school because I can't imagine how she could handle school without any sleep.
And I'm behind on everything right now - cleaning house, doing laundry, buying a new stove (ours died Monday night and we're eating out of the micro and the crockpot), proofing pics for a client, printing pics, buying fall clothes for my kids (poor things are freezing and I'm layering them in sweaters), replying to emails, and about 10 other things. I've been telling myself all week long to just put one foot in front of the other and keep going - the things that really matter will get done. And I guess that's really all I can do.
